The week of Christmas.
The house is cold and has funny smells. It’s an old, large house so the smells could be many things: the renters upstairs—smoking cigarettes and cooking on hot plates; the occupants downstairs—natural gas, human gas, perfume, stale cookies in the cookie jar, turkey, deviled eggs, homemade stuffing, unbathed elderly people, dirty children, unwashed crocheted afghans, well-worn rugs, mothballs, fake logs, fake trees, fake food. Even fake has a smell. “Guess the Smell” could have been a fun, family tradition. But it seems that fun was not the focus of these feasts. Kids, though, steal fun whenever they can.
My sister, my nephew (only a few months younger than me) and I ran from room to room, trying to find the fun. If any was to be had. Sometimes, our same-age cousins were there to horse around and magnify any fun-having. We normally played outside, played games, told jokes, made jokes or snooped around the tree room, looking for the presents with our names. I think it’s socks again. Tube socks.
I am sitting across from Cousin Julie. I was asked to sit. Otherwise, I would be swiping food or fun. I don’t know what to say. People think I’m shy, but I just really don’t know what to say. I feel uncomfortable to look at Julie. Not because she is repulsive to me, but because I am scared that I will stare and ask questions.
Julie has spina bifida. That means her spine is open. She was born that way. She has a wheelchair, which is cool. I would like to ride around in it. That seems like it would be fun, but you can’t do that when someone needs it. I want to ask, but I’m not supposed to ask those questions.
“How are you doing?” Julie asks. Julie is beautiful. No one else thinks so, but I do. She has soft, light brown hair, large eyes, large red lips and a sweet, smiling face. I’m not sure if Julie combs her own hair. I don’t know if she is capable of combing her own hair. Her shoulder-length bob is curled and shiny, but looks slightly bygone. Her mother must comb it.
She is so kind. She has on a cozy holiday sweater and plain, stiff skirt. She is slightly overweight, but so am I. She’s so different from my own family. My sister would never ask how I was. But in my mind, I can’t accept Julie. She’s different.
My family does not engage weakness, illness or difference. Julie was rolled into the family room and locked into place. The people who happened by are the only contact she has. There are older people sitting with her, talking to her, but she is not capable of finding the fun. The moments she steals are connection and kindness.
Why is Julie so happy? I am sad for her. Sad that she can’t run, play, hide, snoop. Sad that she only has old people talking at her. I am sad for Julie because I see that people treat her with sympathy. They approach her wheelchair as a casket. I do too because that is what I see. That is what I learn.
I want to play with her. These are my goals. But she doesn’t play. She can’t play. I want to know Julie, but I can’t ask any questions. But Julie is happy. I see it in her smile. She makes me feel cute. I silently squirm, answering questions when asked, until I am released to find the fun again. I want to understand how to discover Julie, but the desire fades as soon as I am freed.
I never know Julie. I never seek her out. She is gone before I graduate high school and her memories and ideas are lost. We lose her to ovarian cancer and her experiences are not shared with me. I love Julie. I am thankful for her tenderness and brief kindness. I understand now why Julie is happy. She is happy to be alive. She was taught to be nice.